CANCER REGISTRY AND CLINICAL DATA MANAGEMENT
Introduction The Hospital Cancer Registry at SKMCH&RC is a data system designed for collection, management, and analysis of detailed data on patients registered at the Hospital. This Cancer Registry has been functioning since the inauguration of the Hospital in December 1994. Every year, the Registry generates cancer statistics according to sex, age, topography, and morphology, etc. From December 1994 till December 2004, the International Classification of Diseases, Ninth Revision, Clinical Modification, was used to code the diseases. On January 2004, the Registry implemented the International Classification of Disease for Oncology, Third Edition (ICD-O-3) to code the cancer cases. |  | The computerized Cancer Registry is an integral part of the Hospital Information System (HIS), which has been developed with Oracle Corporation software through the collaborative efforts of the Registry staff and Management Information System (MIS) staff.
Results
During the last ten years, a total of 24,758 neoplasm cases were registered at SKMCH&RC (of which 687 were benign and 24,071 malignant), with nearly equal distributions seen among males and females (49.9% and 50.1%, respectively). About 87.9% tumors were found in adults whereas 12.1% were diagnosed in children. The top three malignancies among females were cancer of the breast, cancer of the ovary& uterine adnexa, and leukemia, whereas in males, they were leukemia, non-Hodgkin's lymphoma, and cancers of trachea, bronchus & lungs.
In adults, malignant neoplasm of the breast, oral cavity, and non-Hodgkin's lymphoma, were established as the leading malignancies, whereas, in children, the three commonest malignancies were categorized as acute lymphoblastic leukemia, Hodgkin's disease, and non-Hodgkin's lymphoma.
In the year 2004, a total of 2,577 malignancies were added to the Registry database. The ranking of the top three malignancies for the year 2004 was the same as for a ten-year period extending from December 1994 to December 2004. The Registry uses the American Joint Committee on Cancer (AJCC) staging manual for staging all available cancer sites. TNM categorizes cancers in stages 0, 1, 2, 3, 4, and also as unstageable. Among 2,577 malignant cases, 0.5% cases were staged into stage 0, 13 % in stage I, 21% in stage II, 20% in stage III, and 21% in stage IV. In case of 11% of the patients, no AJCC stage was defined and 14% of the cases were unstageable.
The details of these reports can be viewed by using the following links:
Cancer Registry Report (Dec. 1994 – Dec. 2004) (PDF file)
Annual Cancer Registry Report (2004) (PDF file)
(Adobe Acrobat Reader is required to view the reports.)
Suggested Citation - Cancer Registry and Clinical Data Management (CRCDM), Shaukat Khanum Memorial Cancer Hospital and Research Center (SKMCH & RC) - (www.shaukatkhanum.org.pk) Report based on cancer cases registered at SKMCH & RC from Dec. 1994-Dec. 2006 and in 2006. Released June, 2007.
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